Sunday, April 12, 2009
Friday, April 10, 2009
New Laptop!!
ok so I think I am going to like this new laptop. Yes I splurged and got myself a new HP Touch Smart laptop. It allows me to actually write and then types what I write. This has got to be the coolest thing! - Well everyone here is doing great. Mac's appointment in SFO went great. She does not have to go back-till April 2011! Woo Hoo. Soli is nearly 7 pounds now. We go back to the lung Dr on Monday. Soli Saw the Heart Dr on Thursday and she is boarding high BP but she does not have to go back for 4 months. Things are a bit stressful lately. I find myself wondering no, wanting to simplify my life lately. I have been going thru stuff in the house and purging things I do not need. I have too much stuff but I am the kind of person who can't get rid of things I might be able to use later. I am slowly getting over that though.
Wednesday, April 1, 2009
Monday, March 30, 2009
Ramblings and Photos
First off Please Continue to pray for Stellan and the MckMama family he is not doing very well and we are all waiting for an update from MckMama. I know far to well what it is like to be at the hospital with your child and have a hubby at home and other kids you miss too.
March of Dimes March for Babies

April is fast approaching and I want to thank those who have donated to Team Soli. (those who would still like to donate let me know). To date we have raised.....$15127.00! We need more walkers! It is free and it will be fun. If you are in/near Sacramento let me know and I will give you the link to sign up to walk.
Soli is doing Great. Weaning the O2 and hopeful that we will get some good news at the Resp dr tomorrow. Corbin is getting so big! He has learned a new word today. NO. I was making Bows and he kept reaching into my stuff and I kept telling him NO. He crawled away and when he came back he reached for my stuff again and before I could say anything he yelled NO to himself. LOL. He also knows who baby is. You ask him about the baby and he turns to Soli and points and says Hi. He is still a bit rough but he is learning. He is Very attached to me and Tom lately. He cries if I leave the room. I am sure teething is not helping, not to mention he just got over a double ear infection. But I am glad to report that this morning my happy, smiley baby boy was back. Yea. I missed him! He is babbling and pointing at everything today!
We have drs appointments at UCSF for Mac next Monday. I am kinda nervous. This is the first visit back in 3 years and everytime we go a surgery follows shortly. Hopefully things will be great this time and no surgery will be needed. Mac is just excited that we get to go to the family house..
Caden Continues to amaze me. He starts "special Education " preschool on April 14. This weekend he has taken to the computer. He is a Genious at the internet. He knows how to navigate the sites such as nick jr and knows how to play the games and when something came up on the screen today (a pop-up) he told me clear as day, "you have to click this close it." He was talking about the red x in the top rt of the box. He really is very smart even if he cannot function "normally".
Well here are some pics from the last week. Hope you like them..


Wednesday, March 25, 2009
Stellan's Name Gallery
Taken from KnowingNorrah's blog:
"Way back in August, when little Stellan was still in the womb and the doctors had given him a pretty grim prognosis MckMama followers from near and far started sending her pictures of Stellan's name spelled out in snow, apple pie, crayons and other crazy, beautiful things. And it encouraged MckMama and displayed to the eyes what was happening in the spirit. People were loving, remembering and praying for Stellan. Fighting for him the only way they knew how.In MckMama's own words from her August 8th blogpost, "What a testimony it will be to see such reminders of all the people who prayed for Stellan, that he would live!"And that is what we are doing once again. Praying that Stellan would live and be healed from this heart condition once and for all!"
Add you own photo for MckMama and Stellan. Here is ours.
Since Stellan is a Cloth Diapered baby, Soli and I used her "stash" to write Stellan's name to show we are praying for him...
Since Stellan is a Cloth Diapered baby, Soli and I used her "stash" to write Stellan's name to show we are praying for him...

Alone time!
I am seriously going to laminate this and post it on the bathroom door..
Attention Children:
The Bathroom Door is Closed!
Please do not stand here and talk, whine, or ask questions. Wait until I get out.
Yes, it is locked. I want it that way. It is not broken. I am not trapped.
I know I have left it unlocked, and even open at times since you were born, because I was afraid some horrible tragedy might occur while I was in there, but it's been 10 years and I want some PRIVACY.
Do not ask me how long I will be. I will come out when I am done.
Do not bring the phone to the bathroom door.
Do not go running back to the phone yelling: "She's in the BATHROOM!"
Do not begin to fight as soon as I go in.
Do not stick your little fingers under the door and wiggle them. This was only funny when you were two.
Do not slide pennies, Legos, or notes under the door. Even when you were
two, this got a little tiresome.
If you have followed me down the hall talking, and are still talking as you face this closed door, please turn around, walk away and wait for me in another room. I will be glad to listen to you when I am done.
Oh ... And yes, I still love you.
Mom
Attention Children:
The Bathroom Door is Closed!
Please do not stand here and talk, whine, or ask questions. Wait until I get out.
Yes, it is locked. I want it that way. It is not broken. I am not trapped.
I know I have left it unlocked, and even open at times since you were born, because I was afraid some horrible tragedy might occur while I was in there, but it's been 10 years and I want some PRIVACY.
Do not ask me how long I will be. I will come out when I am done.
Do not bring the phone to the bathroom door.
Do not go running back to the phone yelling: "She's in the BATHROOM!"
Do not begin to fight as soon as I go in.
Do not stick your little fingers under the door and wiggle them. This was only funny when you were two.
Do not slide pennies, Legos, or notes under the door. Even when you were
two, this got a little tiresome.
If you have followed me down the hall talking, and are still talking as you face this closed door, please turn around, walk away and wait for me in another room. I will be glad to listen to you when I am done.
Oh ... And yes, I still love you.
Mom
Waking up and Prayers for Stellan
As I sit here There is a little boy fighting for his life. There are literally THOUSANDS of people praying for this Mck Miracle. Stellan aka: Mck Muffin, Mck Miracle was never supposed to make it to his birth. But thousands were drawn to his mama's blog and began praying for him and when he was born they could find no evidence of the condition in the womb that nearly took his life. It was a Miracle it seemed.
Fast forward 4 months and he once again has the deadly heart problems that he had in utero. Each Tweet is greeted my praises or makes those following hit their knees again to ask for God's protection over this child
His mother's faith in God has me simply stunned. She has this Peace that she knows that whatever happens she will be ok and Stellan whatever the outcome, is serving the purpose that God placed him on this Earth for. I believe in God and I do think he can perform what we see as Miracles but was truly in his master plan long before we prayed. Like she says he KNEW we would all come together to pray for this little boy and God has his life and death, already set in stone.
It is so easy to Praise God when everything is going well but when things are not as we want them to be we very easily blame him. I am very guilty of this. I think we would be called Fair-weathered Christians. I truly aspire to have the faith in God that Mck Mama has.
I have seen first had his Miracles in fact I am holding one right this very minute. I long to know, to understand His purpose for my life. I think Soli is one way of waking me up, one way of opening my eyes and my heart to him to allow him to do his work in me. I will continue to pray for Stellan and drawing inspiration from his mother. You can follow Stellan to by clicking on one of the buttons to the right of my blog..
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